Hereditary Angioedema Book by Kristy Brosz
ILetters to HAE:
Finding Hope While Living
with Hereditary Angioedema
Letters to HAE to be available in both paperback and kindle version
Available in Canada here
Available in USA here
Available in UK here
Available in FR here
Available in IT here
Available in JP here
Available in DE here
Available in ES here
Hereditary Angioedema (HAE) is an ultra-rare blood disorder that has seen much progress in the medical community, making great strides towards the diagnosis, treatment, and prognosis of HAE. This progress is truly remarkable and reflects key progress forward in the HAE community.
Despite the gains in medical understandings and protocols for HAE, one key area has been left behind in the development of HAE supports: a solid understanding of effective trauma--informed psychosocial treatments and interventions.
Letters to HAE aims to start a conversation about the emotional and psychosocial aspects of living with the life-threatening disorder of Hereditary Angioedema. It aims to bring together a common understanding of the lived experience of both HAE patients and family/caregivers through topics that include:Trauma & Challenges of Living an Ultra-Rare Life; Grief & Loss; Partnering with Professional Supports; Isolation & Cultivating a Tribe; and Finding Hope and Living Well with HAE.
Above all else, Letters to HAE serves to highlight the depths of the psychosocial experience while searching for the fluidity of hope in this ultra-rare disease community.
Finding Hope While Living
with Hereditary Angioedema
Letters to HAE to be available in both paperback and kindle version
Available in Canada here
Available in USA here
Available in UK here
Available in FR here
Available in IT here
Available in JP here
Available in DE here
Available in ES here
Hereditary Angioedema (HAE) is an ultra-rare blood disorder that has seen much progress in the medical community, making great strides towards the diagnosis, treatment, and prognosis of HAE. This progress is truly remarkable and reflects key progress forward in the HAE community.
Despite the gains in medical understandings and protocols for HAE, one key area has been left behind in the development of HAE supports: a solid understanding of effective trauma--informed psychosocial treatments and interventions.
Letters to HAE aims to start a conversation about the emotional and psychosocial aspects of living with the life-threatening disorder of Hereditary Angioedema. It aims to bring together a common understanding of the lived experience of both HAE patients and family/caregivers through topics that include:Trauma & Challenges of Living an Ultra-Rare Life; Grief & Loss; Partnering with Professional Supports; Isolation & Cultivating a Tribe; and Finding Hope and Living Well with HAE.
Above all else, Letters to HAE serves to highlight the depths of the psychosocial experience while searching for the fluidity of hope in this ultra-rare disease community.